Violet’s Incredible Journey – Part one – The journey begins | Boston Children’s Hospital

Right there is
where we are from. That’s a long ways, Violet. Our doctors didn’t have
any experience with it. The doctors could
not give us an answer of whether she’s
going to be all right, or it could be really bad. We looked at the work that
Dr. Meara was doing out here, and it seemed like
the right place to be. We found the frontonasal
dysplasia at 22 weeks. And I’ve been in contact
with Doctor Meara since right about then. I emailed Dr. Meara with the
ultrasound pictures that we had and the fetal MRIs. And he called me, and he was
like, we want you guys to know it’s going to be OK. Don’t panic. Just hearing about the cases
that he’s worked on– he’s actually done this a lot. They gave us hope that
everything could work out. And it wasn’t as bleak as
what we were being told. Talking to Dr. Meara became
phone calls and emails a lot. When he calls us, Violet
is a real person, not just another number or operation. It felt like he saw Violet
the way we saw Violet. Her well-being was as important
to him as it was to us. He gave me the
ultimate confidence that he was the right
doctor for the case and that she was in good hands. Violet– She’s just amazing. Her smile and her laugh
seems to be contagious. We love her little face. I don’t even notice the
differences that she has. I’m excited for her because
this– this could change the direction her life is
going and the way people are going to perceive her. This is a big thing to undergo
and to do and to deal with. But I think it’s the
best thing for Violet, which is why we came. There’s a lot of
moments, as parents, that you don’t think
you’ll ever forget, and then they kind of fade
into the everyday grind. And then there’s still those
certain things that stand out. We had a moment last night. She woke up in the
middle of the night. She reached her arms out. And I picked her up. And she gave me a
couple great big kisses. Yeah. She got up. She was very loving. And it was like she’s telling
us that it’s going to be OK. [MUSIC PLAYING]

14 thoughts on “Violet’s Incredible Journey – Part one – The journey begins | Boston Children’s Hospital

  1. God bless her!  I wish her nothing but health and happiness! Praying for her to have a blessed and successful treatment!

  2. what a wonderful little girl I'm sure she will always be looked after by equally loving good parents I wish them all the very best for the future luv and respect always

  3. She's so cute. My little sister had this. The surgery didn't go as planned, and she passed away. It's been hard, but the only thing I think about his how she used to kiss me on the forehead. RIP Lynlee. Violet is so adorable, and it doesn't matter how you look, it matters what's in the inside, not on the outside. IM sitting here balling my eyes out, and hoping violet makes it along this wonderful journey.

    ~Katelyn, A proud and strong big sister.

  4. Beautiful little girl! Hope everything goes well! Surgery will only enhance her beauty! Good luck baby! Great parents!

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