Sarcoidosis: Symptoms, diagnosis and treatment | Ohio State Medical Center


Sarcoidosis is it’s an unusual disease where
the lymph nodes get inflamed in the chest and it can involve other organs. But it’s
a benign condition and a very good prognosis, very treatable. Because it’s a fairly uncommon
disease, we have established a dedicated clinic to take care of patients with sarcoidosis
at the university. Sarcoidosis occurs about 50 percent in the Caucasian population and
50 percent in the African American population. The peak age is around age 40. So it’s sort
of a young to middle age disease. Sarcoidosis again, in most people, is totally asymptomatic.
In those who are symptomatic it’s about a yearlong illness and then it goes away.
Now they may still have the swollen lymph nodes, but the sarcoid is inactive and they
never have another problem. It’s about five percent of sarcoidosis patients have chronic
disease with relapses, and flares and need chronic therapy. Probably the most common
symptom in sarcoidosis is cough and maybe some shortness of breath. And then usually
a chest x-ray is obtained and they see the swollen lymph nodes. Other symptoms would
be joint complaints and a skin rash, and people can be fairly ill with fever and night sweats
and weight loss, or they can present more chronically with cough and shortness of breath.
The treatment of sarcoidosis it’s interesting it runs a gamut about 75 percent of people
never know they had the disease. They get a chest x-ray for surgery or something else
and they see these big, swollen lymph nodes. So 75 percent don’t need treatment at all,
25 percent do have a symptom, do need treatment and the treatment is largely with corticosteroids,
which are very effective. But because sometimes treatment needs to go on for 6 to 12 months
or even longer, we have investigated other options to try and avoid the corticosteroids
side effects so things like Methotrexate and Imuran and even some of the drugs that are
used in rheumatoid arthritis like Remicade are used in sarcoidosis.

11 thoughts on “Sarcoidosis: Symptoms, diagnosis and treatment | Ohio State Medical Center

  1. what I hate to hear is doctors blowing you off because "most people don't need treatment" I was diagnosed 8 years ago after kidney failure and high calcium levels. I was having night sweats and my feet started to fall asleep all the time. steroids helped but the stones kept happening. it's now moved to my lungs, I have neuropathy in both feet and hands and am in pain. I have a cough that hasn't gone away in 6 months and am now on oxygen at night and prn during the day. yes I still take steroids, give myself injections of methotrexate and have remicade infusions. the problem is the littlest bump or scratch now turns into big infections and I get pulled off all the meds that help while the treat my infection. I'm in several fb groups with thousands of people, all having the same issues. The medical field continues to claim it's rare and most physicians have no idea how to treat it or how to coordinate care. patients must fight daily for people to believe they are sick and some of those people are our own doctors.

  2. I find it absurd that they call Sarcoidosis a benign disease. This disease can destroy every organ in my body and most likely will and eventually render my lungs infunctional with pulmonary fibrosis. Sarcoidosis is less curable than cancer or should I say it's totally incurable. The hope of going into remission with sarcoidosis is really unknown with not enough studies showing the chances of going into total remission.

  3. here's several suggestions for solving sarcoidosis naturally
    Consider changing your Diet – In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in cereal grains such as wheat.
    You could also try different Natural supplements, herbs, and vitamins
    Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.
    (I discovered these and the reasons they work from Remission crusher tactic site )

  4. There are a few things for solving sarcoidosis at home
    Consider changing your Diet – In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in some cereal grains such as wheat.
    You could also try different Natural supplements, herbs, and vitamins
    Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.
    (I read these and the reasons they work from Remission crusher tactic website )

  5. here's a few suggestions for treating sarcoidosis naturally
    Consider adjusting your Diet – In some cases sarcoidosis has been associated with celiac disease, such as a reaction to certain protein chains commonly referred to as glutens found in some cereal grains such as wheat.
    You could also try different Natural supplements, herbs, and vitamins
    Also the use of anti-oxidants and natural anti-inflammatory supplements could be of benefit.
    (I discovered these and why they work on Remission crusher tactic website )

  6. I have severe neuro and pulmonary sarcoidosis I was diagnosed in 2012 I'm also a brittle diabetic, steroids were used for 13 months, I'm now still in 2017 being treated with Cellcept and Remicade, this disease is chronic it hasn't gone away and the one person I have talked to that also has( just pulmonary thank God) has had it for years and still struggle every day, the lesions or granulomas are benign but if they fill up your lungs you'll die if they are in your spinal cord it does great irreversible damage and it doesn't just go away, or you die or become paralyzed, my skin is affected also, I have avoided looking up this disease since I was diagnosed because I saw doctors being dismissive or just don't have a clue, it's very upsetting

  7. I needed to Hear this because I'm hurting real bad and people look at
    me crazy and I just want to be able to be free as I'm writing this i'm in pain😊✌

  8. How many people with Sarcoidosis are catching a " royal attitude" with this doctor. He's describing a disease that is killing people as though it's a cold that will go away within seven days, or treat it with some Nyquil.

  9. This info appears out of date due that it is ignoring successful treatments using antibiotics. I first became aware of the antibiotic approach after stumbling upon an article in a basic Google search: Bernie Mac didn't have to die pervasive misconceptions about sarcoidosis. Two sarcoidosis antibiotic papers were referenced in this article dating 2003 and 2004. After forwarding the papers to my doctor she found newer papers dated 2014 and 2017 using a CLEAR regimen. My sarcoidosis manifested itself in my eyes but no other obvious symptoms. Still waiting for contrast CT scan results since standard chest x-ray was inconclusive. It appears some doctors are ignoring the very high correlation to mycobacterial infection. The CLEAR treatment regimen consists of levofloxacin, ethanbutal, Azithromycin, rifampin or rifabutin. We decided to use a belt and suspenders approach and follow the first papers antibiotic regimen from 2003/4. I'm taking prednisone AC 1% eye drops 4x daily, prednisone 20 mg 2 tablets 1x a day, sulfamethoxazole tmp ss 400-80 1 tablet 2x a day, minocycline 50 mg 1 capsule 1x a day, Azithromycin 250 mg 1 tab 1x a day. I'm two weeks into my treatment and hope to eliminate this infection rather than treat symptoms like most doctors are recommending.

  10. I have sarcoidosis for thirty five years, and there is nothing "benign" about it. I find it shocking to hear doctors speak in these terms about a devastating, excruciating disease that can tear your body apart, and cause a lifetime of pain and suffering. The prognosis is not good or benign for anyone with chronic, systemic sarcoidosis. One thing that contributes to our suffering is the complete ignorance of the bulk of the medical profession, about the disease. It is a disease very similar to Lupus, without the understanding, research, or support.

Leave a Reply

Your email address will not be published. Required fields are marked *