Free From Seizures – Maggie’s Story – The Nebraska Medical Center


it was about a year after we got married.
all of a sudden out of nowhere and it turns out it started with pregnancies.
I could always tell when I was pregnant even before a test because I had a seizure.
The pregnancies were very high risk it was terrifying for me. Because obviously, when
you have a seizure while pregnant, it can be dangerous for the baby.
I started seeing so many doctors. it was, ‘well you have epilepsy. here are some drugs.’
It was very frustrating because here you are, 21 years old and all of a sudden start having
seizures. So it was very frustrating. I think we went to almost every doctor in
town. That’s why I wrote Dr. Madhavan’s office an
email. If this is not something your office can provide,
I won’t waste my time switching doctors again because I’ve already done that too many times.
I guess this is my last cry for help. Thank you for taking the time to read this.
[Dr. Madhavan] I read that email and it motivated me in many ways to see if there was anything
we could offer her. It turns out, there was. [Monica]: When it comes to our patients, it’s
extremely important that we get to know them personally. We become part of their family
in a sense. They want us to understand what they’re going through; the hardships. We are
here to advocate for them and help them get through the process.
[Maggie] He gave me so much confidence that we can at least try to find something and
figure it out and take care of it. [Dr] She suffers from a common type of adult-onset
epilepsy. it originated in a part of the brain that was very treatable. for her, that treatment
was surgery. [maggie] my family threw me a ‘brain bash’
party a few weeks before my surgery. My brothers dressed in hospital gowns, one had a strainer
on his head with wires coming out. Another one wrapped himself completely. They went it right here and hooked up the
stuff and closed me up. I was in the ICU for a couple days.The elctrodes were hooked up
to the machines so they could pinpoint exactly where the seizures were coming from. And then
know what needs to be removed and what consequences that would have.
They go back in, take them out and sew you back up. It sounds like a piece of cake, but…
looking back now, I’m so thankful I did it. [Dr] It’s amazing to see these motivated people
out there once we have a small part in making them better to see how they blossom in life
after having appropriate treatment for seizures. [Monica] she is a different person. I think
she’s found trust in the medical field again. To know she has a team of people that will
help her no matter what and listen to her no matter what. At this point, she’s very
happy with the way things are. [kids playing]
I feel so lifted. It’s a lot of inner burden – people may think you don’t stress about
it too much, but it was one of those things always in the back of my mind. When’s the
next seizure, where will I be? We’re focusing on helping other people. I’m
not weighed down so I can go help other people. I can support people going through medical
things that are awful. I feel like what I went through – 8 years
of these horrible things and all it took was one doctor to say “we can help you and we
may be able to get rid of this thing.” It’s amazing; I’m happier, I’m not as tired
all the time. A lot more engery. It’s been great for our family.

5 thoughts on “Free From Seizures – Maggie’s Story – The Nebraska Medical Center

  1. Sounds like your medical center has the right attitude! We need more doctors and medical technicians to listen to and genuinely care about their patients. Keep up the great work!

  2. Maggie, we are so happy you are doing well. It was a long road for you and you were amazing in handling it. You look beautiful in the video!

  3. What surgical procedure did she undergo and what type of epilepsy did she have? My lil sister has lennox gastaut syndrome epilepsy (i beleive) and is undergoing an anterior corpus callostomy

  4. What surgical procedure did she undergo and what type of epilepsy did she have? My lil sister has lennox gastaut syndrome epilepsy (i beleive) and is undergoing an anterior corpus callostomy

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