Carcinoid Clinic – The Nebraska Medical Center

[music] There is a place where they can get
it all done at one place. Our hope is to turn this disease away from being a medical curiosity
into something that at the end of the day we can say that it’s a disease that’s
curable. A few years ago, I treated a patient with
Carcinoid tumors, who had very extensive disease, I was told that she had no options for treatment
and should really go home and live out her life it’s a slow-growing tumor. And there
wasn’t anything to do. Through a variety of people, she came in contact with me and
at the time, I proposed to her something fairly radical in trying to get rid of the tumors
which she signed up for, which is pretty tough; couple of surgeries she had to go through,
and she’s really been a crusader for us since then. And what has happened as a result
of this one patient is that we’ve seen a number of other patients with Carcinoid and
other neuroendocrine tumors, and has prompted us to set up a specialized clinic at The Nebraska
Medical Center. We have now set up this multi-disciplinary clinic consisting of hepatobilin surgeons
and medical oncologists, we even have a family care practitioner; a family doctor, at the
clinic, helping us with this. We have a number of nurses. We’ve employed or in the process
of employing research nurse to help us collect clinical and biological data and so what we
have established is a focal point for patients to be able to refer to with us these particular
tumors which are, as I said before, uncommon and not many people know what to do with it.
So what the patient can experience is this; he or she will be seen by a couple (even three)
physicians in that afternoon, ranging from someone taking a history and physical examination,
and meeting with the medical oncologists and then meeting with the surgical oncologists
(the surgeon) and then probably meeting possibly with all three (as we discussed the case).
Obviously we’d sometimes with investigation that have not been done and that’s really
the normal. We’d then set up the laboratory tests, radiological investigations. And a
lot of those can be done from where the patient comes from and information can be sent back
to us. But what we invision and what the patients can expect is a thorough consultation not
only with just one physician but with a few physicians in a multi-disciplinary team where
they get the opinions of both the surgical side and the medical side. We’ve been setting up this clinic; one of
the first things we consulted with was the cancer center with Dr. Cowen. He’s offered
us his full resources to be able to do not just clinical research but laboratory research
in this disease. Problem is there are a few drug trials going on in spotty places throughout
the country, but that’s about all. I could probably count on one hand the number of people
really doing any laboratory research to these diseases. The first step that we have done
is employ research nurses whose then going to obviously realize with scientists and hopefully
we’re going to extend the clinical research into laboratory research which we would then
be able to retranslate it back into clinical results at the end of the day. What we’re
offering (you know, what we want to make sure the patients have) is first and foremos) a
source of information they can turn to to be able to get the latest and most up-to-date
information options that are available to them. They don’t necessarily have to have
those forms of treatment given or administered to them here, but they need to be made aware
of what is available for them. We’re in the center of the country; access
is easy and we can offer expert advice, research and therapy, all at one place.

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