Bentley’s Second Chance – Part Two: Rehearsing a tricky operation | Boston Children’s Hospital


Say hi to Bentley Hi Bentley Bentley’s a young boy who by all rights should be a normal little guy and should be growing up and playing, but he has an interesting problem with the way his head and brain developed. Before birth, they realized that he had this encephalocele, which is an opening in the top of the head. He has brain inside and then he has brain that’s outside. In addition to that, he has a lot of fluid causing that entire mass outside to slowly grow. Every month that mass, called the encephalocele is getting larger. This particular encephalocele is somewhat unique, a lot of the times with encephalocele the brain tissue is very abnormal looking. In Bentley’s case, this was all functional brain tissue that if we injure in any way could change him in some way. We can’t simply resect that brain tissue, we have to protect that brain tissue and get it covered up safely for the rest of his life. What we’ve be able to do here at Boston Children’s Hospital is use our Simulation Center to really simulate in advance what the operation is going to be. In the operating room we probably will avoid making a cut there. At this point we could start to try to bend those out a little bit. Okay, yeah. and see how that looks. Basically, just cantilevering them off of those little lower points. What I’m holding here is a skull model of Bentley’s head. The top here is actually the hole in the top of his cranium and about half of that brain is outside. This model is incredibly helpful because it allows me actually to see and feel in 3 dimensions where the tissue is outside of the skull. You can see the dura on the outside and you can see the brain on the inside. This space here is filled with cerebrospinal fluid and the ultimate goal will be to move all of this back inside the skull here. We’ve done some measurements in collaboration with the Simulation Center, in collaboration with the Simulation Center, which show that we have to expand his skull by at least 20 percent. Dr. Proctor and I think that what we’ll probably do is make linear cuts here and that will allow this part of the back of the skull to open up and allow this then, to re-enter the skull. You cut the bone, but they all remain connected at the base. And bone is living so that over time all the spaces here are going to fill in with new bone and it’s all going to be covered. This case is rare and somewhat different than almost all of the encephalocele cases that we’ve had. This is the first time that we’ve had so much good brain outside of the skull that we’ve attempted to replace it back into the calvarium. The special risks that we’re worried about in his case is one, taking all of this normal brain tissue and moving it quite substantially and having it still maintain all of its function. There’s definitely the risk of causing a stroke by injuring any of the blood vessels going to it. There’s going to be a significant risk of leaking fluid. Because it’s so unique, exactly how this encephalocele will impact his neurocognitive development as he gets older is going to be a question that only time is going to tell us. Our hope with Bentley is that if we can save and preserve this brain that is outside the calvarium and put it back inside that he’ll continue to function and hit his developmental milestones and do well in the future.

58 thoughts on “Bentley’s Second Chance – Part Two: Rehearsing a tricky operation | Boston Children’s Hospital

  1. What a cutie, and so alert, beautiful eyes. Boy he overcame great odds of what could have happened with surgery. The two of you are the perfect Mom and Dad for your perfect little guy. He will thrive with your love.๐Ÿ’•

  2. I hope that Ben/Bentley uses every cell of that brain of his to be the smartest human ever. Period. He already looks like he is thinking very deep. Go champ. You can do it.

  3. He will never have a normal life. Years of special education and an adult life living like a child, that's if he lives, facts guys.

  4. I was at BCH when I was in my first years of life. I wonder if my records are still available. It would have been 1972-1975.

  5. He is so cute. he is a strange boy. he will mack the surgery. He is lovely, perfect just as he is๐Ÿ‘Œ๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜˜๐Ÿ˜™๐Ÿ˜™๐Ÿ˜™๐Ÿ˜™๐Ÿ˜™๐Ÿ˜™๐Ÿ˜š๐Ÿ˜™๐Ÿ˜™๐Ÿ˜™๐Ÿ˜™๐Ÿ˜™๐Ÿ˜™๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ’‹๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜โคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโคโค๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘ฃ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ‘Œ๐Ÿ––๐Ÿ––๐Ÿ––๐Ÿ––๐Ÿ––๐Ÿ––๐Ÿ––๐Ÿ––๐Ÿ––๐Ÿ––๐Ÿ––๐Ÿ––๐Ÿ––i promise he will mack the surgery ๐Ÿ˜˜

  6. Really inspiring. I like how far technology has come to help kids like this, or even kids in general.
    Also I find it awesome that a doctor named Doctor Proctor is actually involved in this. :p

  7. Hes the cutest!!! So happy you kept him. Such a blessing to have a special child. I just know hell be fine and live a great life. I just know.

  8. this is a great video, but i think it would've been MUCH better without that annoying music! it was so loud and annoying that i couldn't focus on what they were saying, it was competing with their words. bummer.

  9. โ˜€๏ธ ๏ผณ๏ฝ•๏ฝŽ๏ฝŽ๏ฝ™ ๏ผค๏ฝ๏ฝ™๏ฝ“ โ˜€๏ธ says:

    Part 3 seems to have disappeared but hereโ€™s part 4
    https://youtu.be/BXnQuZ9cQk4

  10. God bless you and you d beautiful little son. He is sooo
    Bright eyed and smart.
    Dear God
    Please bless the Di ties who will do this operation guide
    Their hands and minds and dear Lord please let this
    Precious little angel as he goes through this procedure
    Bring him to good health and help him to heal. Be with him lord all the way. Bless him in what ever will be your will dear
    Lord not ours but Your will be done. Lord please bless this
    Family and keep them forever in your care
    Amen
    Blessings always Tara

  11. Looks like he's gotta lot of scalp to stitch over a skull prosthesis. Slowly push the brain into a more compact mass able to be put into the calvarium..plate the open area with a small floating plate of protective artificial skull(so the brain can grow normally as an infant with open skull sutures does. He will likely have to be extremely careful not to injure his skull for years, but eventually he should have a mostly complete skull protecting his brain…alla drainage and circulation of cerebro-spinal fluid would have t'be figured out too…new techniques for hydrocephaly and spina-bifida will give some excellent ideas for that..
    This is my analysis and treatment plan for correcting the malformation…let's see how my plan fares agin th' doc's in video three(haven't watched it yet…) By th'way, I ain't in the medical field atall,just an ol'farmer..)

  12. baby is gorgeous. May the lord bless the family and this lil angel now and forever.. much love from South Africa

  13. Medical science is insane!!! This is so cool!! Just 10 years ago this procedure wouldnโ€™t have even been attempted, itโ€™s so cool how far weโ€™ve come.

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