100 thoughts on “A Very Difficult Day At The Hospital

  1. Yeah everyone should go 30 minutes late over your appointment time if you don't want to wait…because everyone usually has to wait for 30 minutes if you arrive exactly on your appointment time normally

  2. They should give you a Xanax and 0.25 mg for the day before and the day of your injections. I have had 46 injections in my neck, lower back, hips, knees and groins but I don't mind them. Good luck ๐Ÿ™๐Ÿ˜˜๐Ÿ’•๐Ÿ’™๐Ÿ’›๐Ÿงก๐Ÿ’š Nurse Bev Upstate NY

  3. OMG you two need to move to a warmer weather area. I know it would be difficult with Doctors and Family but it sure would make life much easier โฃ๏ธ

  4. Do you wonder what's going to happen when you go into hospital to have a baby?
    I'm not hating whatsoever, I'm just a deep thinker.
    When you guys have a baby you will have to rely a lot on family support. You won't be able to drive yourself in labour, when u have your baby you won't be able to take a day nap unless u have a friend or family member over as unfortunately your partner can't help you. I worry a lot, about lots of things. Not only will you be up every 2 hours with the newborn at night but you also will need to do house cleaning and prepare meals for the pair of u.
    It's going to be a lot of work.

    I think u guys r a cute couple

  5. Shane I feel bad you have to get those injections but I'm sure they help. Anything around bone is so painful. People don't know. I had to get two bone marrow biopsies and the doctors made light of it.

  6. Am I the only one who thinks the name of the drug sounds like a party (like lollapalooza…spinraza! weeeee). Do you think they did this on purpose? ๐Ÿ˜€

  7. God bless you having to go through these procedures….We'll all be celebrating your 99th birthday! xoxo

  8. ๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜๐Ÿ˜€

  9. Glory be to God and you are from Paradise Paradise๐ŸŒผ๐ŸŒป๐ŸŒน๐ŸŒธโค๐Ÿ’•๐ŸŒท๐Ÿ’“๐Ÿ’–๐ŸŒบ๐Ÿ’

  10. Ok so for the big big question, get ready………..are there gonna be wedding bells in the future? Or are you married already?

  11. I have no idea if this would be helpful with your situation but I was thinking about your contractures and wondered if using a quadrasizer would help loosen them. There are videos on YouTube of people that are helped using one. With your viewership you might be able to work out a deal with the company. I'm a retired occupational therapy practitioner and the machine really looks like it would help loosen your joints for skin care.

  12. You two are amazing. Iโ€™d cat call both of you! Hanna could be your shield from me picking you up and carrying you off for a laugh fest. Seriously though, beautiful souls. You are inspiring.

  13. God bless this day an time the test on meds for him are getting better than ten yrs ago you are better in this time soon will be a cure Jesus is the cure lots of love

  14. Why in the world do you two continue to live in Minnesota? I have been there numerous times and believe me, I was soooo glad to leave, especially in the winter lol. Have you guys thought about moving from there perhaps to somewhere that is warm all year long? Maybe Arizona, southern California or Florida? I lived most of my life in Michigan and 13 years ago I moved to northern Alabama, a decision I will never regret lol. It is so much nicer in the winter, yeah we get a little cold weather but nothing like Michigan does. Our spring started this year in February lol and I loved it and for the life of me I just cannot understand why people stay living in areas such as the Minneapolis areas, way to cold!! Get out of there!! So Shane, because of the scar tissue building up, what is the doctors solution? In 4 months, 2 as I am writing this, you have to go back and then again 4 months later and again another 4 months later, the scar tissue is just going to continue to build up, there must be some way to rectify that.

  15. Haha โค Shane is so cute. I love the relationship you guys have! I'm addicted since I watched SBK's video about 2 days ago! Subscribed right away and almost completely watched all videos on your channel. Much love to both of you โค

  16. Have you tried liquid IV? You can get it at Costco. When you put it into 16 ounces of water, it hydrates you like drinking 3-16 ounce bottles of water.

  17. Whatโ€™s going to happen if the scar tissue gets so bad that itโ€™s impossible to get the tube or needle into your spine? Because I know that without the injection your muscles will continue to weaken.

  18. Spinraza is Shaneโ€™s super power! *Shane uses his Spinraza to double his life,energy and becomes 10X stronger*!! Shane is a SUPERHERO ๐Ÿฆธโ€โ™‚๏ธ!!

  19. How do you guys afford one of the most costly medications and procedures in the United States? Does your insurance cover it? What kind of insurance is it? Is there a large copay? Do you go through any nonprofit groups to help you pay?

  20. Hey buddy ever time I watch the night before your treatment Iโ€™m nervous as hell myself. You got this bub.

  21. An amazing relationship something i wish i had….i spent 1 year in a relationship and just found out i have been lied to…..And now im taking my own life….thanks for making me smile ๐Ÿ˜ƒ

  22. Hi, can I ask you a question? I am a sma patient with platinum in my body and spinraza injections for lumbar puncture could not be done. Scopide was also told that the image could be given accompanied by a catheter. How do you get the medicine?

  23. I just had a colonoscopy 2 days ago and I was a anxious mess. This makes me realize that was nothing compared to what some have to go through continuously. I wish I had your bravery and spirit, Shane.

  24. Whenever your mind goes to thinking about that needle in your neck just start thinking about what this injection will do for you! Youโ€™re getting stronger! Thatโ€™s wonderful! Try to think about what that injection has done for you rather than the actual procedure

  25. I swear the more I watch the 2 of ye I fall in love with u all my love from your biggest fan and from Ireland ๐Ÿ˜๐Ÿ˜š๐Ÿ˜šโคโค

  26. Ouch for the injection ! Your a wonderful fiancรฉ and full of practical solutions in that pretty head of yours. Lovely couple, keep the videos coming, they make my day xxxxx

  27. Hi iv just come across your channel today. Iv just subscribed. Very funny, inspiring and motivating. How did you two meet? Thank you.

  28. ์•ˆ๋…•ํ•˜์„ธ์š” ํ•œ๊ตญ์‚ฌ๋žŒ
    ์ €๋Š”์žฅ์• ์ธ์ด๊ณ 
    ์–ธ์–ด์žฅ์• ์ธ

  29. Both of you are beautiful together – you play off each otherโ€™s personalities! Fun ๐Ÿ˜€

  30. I know I'm almost 5 months late, however I still wanted to wish u all the best and sending good thoughts u and Hannah's way. U two are perfect together, u compliment one another so well. LOVE ur sense of humor, even when times aren't that cheery. That's an amazing quality to have and shows ur inner strength. Congrats on the engagement, wish u both the best!! BTW, real quick, totally off topic question but where did u find or get that crazy, beautiful world map?! I've never seen anything like that, I'm definitely wanting to find that, if I'm able. So colorful and vibrant. ๐Ÿ™‚โคโคโค

  31. One spinraza injection cost 125000 dollars! Does your insurance pay the medical bills or how you can afford that?

  32. 0:11 Apparently you still did.
    4:53 If you don't mind me saying so, Shane… I prefer the view opposite to the one you offered.
    10:22 No, but then, I'm not into horror movies.

  33. If you can't laugh at life, how sad our days would be! Thank you for showing that differently abled,(which really is all of us), people face challenges and overcome them and laugh about it. Bravo!

  34. I wonder is this drug available in my area ๐Ÿค” my boyfriend has muscular atrophy and down here in sc we were told it's no treatment just garbapentin for pain ๐Ÿ˜‘

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