๐Ÿฅ FIRST DAY IN THE HOSPITAL | WHAT IT’S LIKE FOR THE PATIENT ๐Ÿฅ (11.13.17)


I’m at the admitting office, where I’ll sign papers, and then I’ll go up to the floor. ♬ Don’t you think we’re better together ♬ ♬ Oh ♬ ♬ I think we are ♬ Good morning! And hi guys and welcome to Monday and hospital admission day, so… (coughing) Your face looks kind of creepy, with the rain in the windshield. We’re gonna do this vlog a little bit different. We’re gonna try to walk you guys through… (coughing) I was thinking back to a few years ago before we were vlogging. (coughing) I remember sitting in the hospital and making a video for a little friend of, a friend of mine who was like 4 at the time and I was explaining the buttons on my IV pump and explaining how the IV pump works and that it goes into my port and I thought you know what, we’ve never really explained too much about the hospital. We’ve done a hospital room tour and you guys enjoyed that, so we thought we’d do this vlog just a little bit different and try to do more of like a explaining type of thing. So if you are in for that little adventure with us here we go, and of course as we always say every hospital is different, every cystic fibrosis patient is different and the plan for admission is different for everybody so this, we are simply telling our story and this is what it looks like when I go in the hospital. It wouldn’t be an arriving to the hospital vlog without nervous belly. Pre-hospital jitters, it’s real. We’re sitting in traffic. Peter is parking the car and getting the bags and I’m at the admitting office where I’ll sign papers and then I’ll go up to the floor. I finished at admitting and it’s time to go up to the floor. Peter is in the elevator. He got all the stuff and parked the car. l’ve gotta find the right elevator. I don’t know. All right, time to go up to the floor. Awesome. (Peter) Okay, we are here and getting settled in. All right so I am here, I’m in my room and I’ve talked with the intake nurse… admitting nurse, and she goes through a bunch of questions. It’s just policy and they have to go through all these questions but when you’re like not feeling great that’s like the last thing you want to do, but you get through it, you answer all the questions, and the nurse practitioner came in, went through the plan and my day nurse left, my night nurse is here and things are just going, you know? The plan is to pre-dose me with benadryl tonight for my IV medication that I tend to have a reaction to, so that’s the plan for tonight and they brought an IV pump, feeding tube pump, even though I’m still hooked up to mine for right now. I’m feeling a little bit feverish but you might be able to tell from my pink cheeks, but that’s why I’m here. Because my body needs some more help and if you’re new around here here’s a little background for you. I was born with a genetic disease called Cystic Fibrosis. It affects many parts of the body, mainly the lungs, and the pancreas, the liver, but a lot of different things. I just finished three weeks of IV antibiotics to try to treat the chronic bacteria which is in my lungs and we’ve also just discovered that I’m growing another bacteria as well So I’m in the hospital now to start treatment for that other bacteria. I will continue all of my normal medications that I’m on for my liver and my vitamins and my nebulizers and all of that sort of thing and then we’ll add on some extra powerful antibiotics. While I’m in the hospital we also do more aggressive airway clearance, which means the way that we clear my airways of all of that sticky mucus which is where the bacteria hide. It’s a perfect storm for a not great situation. So, tomorrow when the chest pt therapists are in… it’s after, it’s after hours right now but we will do chest pt, chest physical therapy, which is where I’m laying on my hospital bed and they do manual percussion, so basically like, like this to shake the lungs up basically and loosen the mucus and something about cystic fibrosis is it’s a lot, a lot of my life revolves around mucus. We got to get the mucus out of my lungs and it’s ever so glamorous but this is my life and it’s not everything about my life but it is a big part and so Peter and I have decided since we can’t ignore the issue we just try to embrace our reality and make the most of our time wherever we are located and right now we are located in the hospital, and so we’re gonna just, we aren’t going to view this as a pause in our life, we’re just going to view it as a new location so that’s one of the ways we cope with hospital stays. Hey guys. We are pretty much settled in. Mary told you about the question and answer time. Yeah, about that. Was that like the most dreaded part about coming into the hospital? About that first day? About the first day. Probably. Yeah. And like I said before, when they’re asking all of those questions it’s their job and it’s the system and that’s something they have to do and I respect them for their job they have to do, but, from our perspective this is kind of what it feels like. How are you feeling? How’s your cystic fibrosis doing? How long have you had cystic fibrosis? Tell me your history in the last several months, day by day. (Mary laughing) Hour by hour. How many times have you coughed in the last 36 hours? How many times have you peed? How are you feeling? How many bowel movements have you had? (Mary laughing) What’s your favorite color? How many fingers am I holding up? (Mary) Oh, there was one test they did when I was in Chicago where they’d ask “What’s the date? Who’s the president?” and I was really nervous I was gonna get one of those wrong. When did you last clip your toenails? (Mary laughing) When you brush your teeth which side do you start on? What side of the bed do you sleep on? Now let’s go through your medication list. Vitamin A. Vitamin B. Vitamin C. And when did you take those last? So I see here you take vitamin D at 10 o’clock a.m. What time would you like to take that? When did you take those last? (Mary laughing) But, for real guys you have to laugh because these sweet people, they’re doing their job and so they might have come in and asked those questions, and the next person might come in and ask the exact same questions, but that’s part of hospital life and we choose to just laugh about it because what else are you gonna do? (Peter) I guess you could cry. You could cry. (Peter) I was gonna show them these cool new gowns. And one last thing, if you are a nurse or an admitting nurse I am gonna give you one big high-five because you have to ask a lot of questions and the admitting nurse and I were laughing together because my hospital redid their intake questions and they’re like really detailed now, like really kind of awkward actually and she was like “Yeah, I have to ask everybody this.” And I was like “You’re doing a good job.” Okay, so show us the new gowns. Yeah, so because Mary’s on contact precautions and that’s because she has bacteria that we don’t want to spread to anybody else and also so that they don’t bring in anything that Mary could catch, so they… (Mary) And just spreading it to any other cystic fibrosis patients, it can’t be spread to normal people. Correct. So, they have these new gowns, they also wear gloves but they are three armed. Check this out, it’s like super thorough. (Mary) The old ones you’d kind of put them on the other way. Look at that. Full coverage. So, those are nice and thorough, good job! Remember our song? Thoroughness is what makes the system work. (Mary laughing) (Mary) I did forget about that! There was one time I was in the hospital and I felt, like I was just feeling frustrated with the number of times that they had to do my blood pressure at times when I’m trying to take a nap or whatever and to remind myself that they’re doing this for my good we came up with a song that “The thoroughness is what makes the system work.” and so whenever I feel like “Ahh! You’re asking me how many milliliters of water I drank again!” I’d be like “The thoroughness is what makes the system work” and that just helped me like breathe and tell them how many milliliters of water I drank. Did you tell them what the plan is? Here in about an hour we’re gonna start Mary’s first dose, first dose of vancomycin. We’re gonna stretch it out over two hours to Mary’s gotten the red man syndrome side effect before where she was red and itchy and it’s a known reaction to this medication, so she’s gonna pre-dose with IV benadryl and stretch it out it over two hours. Yeah. That’s, that’s the start of the plan. If I do get red man syndrome we’ll show you what it looks like but hopefully we won’t have anything to show you. Yeah. But we’ll see you guys in a little bit. Well, let me give you a little tour of the room. It’s a pretty basic, it’s a hospital room. So, the nurses have a little computer station where they check in meds and Mary’s chart and everything. IV pump. Mary keeps her feeding tube pump with her on the bed that way she’s more mobile rather than having to cart the pole around. This is actually a tuberculosis lock room so it actually has like a separate entrance that they don’t use because she’s not on air lock precautions but (Mary) There might be other reasons besides tuberculosis, but that’s the only one we know of. Yeah, yeah, so basically airborne precautions where basically it’s like a air sealed room that they can enter into and then come into here rather than coming in out of the hall. Anyways, hand-washing station, refrigerator, tv, cuteness, and I’ve got a little bed in the window and then the bathroom. All the rooms around here are pretty much the same just different configurations and sizes. Mary goes to a children’s hospital because the both pediatric and young adults meet at this hospital and so she’s treated by adult physicians just in this facility and so they have a whole like young adult program that… (Mary) For Cystic Fibrosis. For cystic fibrosis that is yeah, that’s why we’re in a children’s hospital, but there are some benefits to that such as the bed in the window for me and it’s kind of bright and cheerful around here and that noise, you’ll probably hear two noises this week while we’re here, the one is because it’s the airlock room. There’s a fan up here that is always running, it’s like a filter I think in the room and then we also, it’s kind of dry in here so Mary had the idea of them hooking up the humidifier. They’ve done that before when I’m like having bloody noses and stuff to try to cut down on the dryness in the air. Yep, so Mary’s vancomycin is hooked up so the bags right here and it runs down into this pump and the way they describe it is that this is the brains and this is the pump and so it’s got a program programming how fast it goes, it goes through this line. We’re running it over two hours and goes into Mary’s port that we already had accessed. And then it fights that bacteria, hopefully. And Mary’s drugged with IV benadryl so she’s feeling pretty out of it and hopefully she doesn’t feel any itching. So far so good. So we’re gonna call it a first day in the hospital, (Both) And as always, we will see you tomorrow. Good night! ♬ And the after-party is with the Ollie boy. You wanna say good night, guys? Good night, guys. We’ll see ya tomorrow. ♬♬

100 thoughts on “๐Ÿฅ FIRST DAY IN THE HOSPITAL | WHAT IT’S LIKE FOR THE PATIENT ๐Ÿฅ (11.13.17)

  1. In today's video, we talked a bit more in depth about what it's like on day 1 in the hospital. Need a laugh for today? If so, be sure to watch the video and wait for the part where Peter imitates the nurses and doctors. It made me laugh!

  2. Since both you & your sister have CF, and some things can be spread only between CF patients, was it difficult to share the same home growing up? Were you always worrying about getting each other sick?

  3. Fingers crossed your hospital stay is as short as possible. Lots of love from Sunderland in the North East of England xx loraine xx

  4. Iโ€™m a medical oncology nurse. If it makes you feel any better we donโ€™t like asking all the questions anymore than the patients like answering them. I always tell them I know youโ€™ve been asked this multiple times but I have to ask again. You can request to answer them at a different time if you arenโ€™t feeling up for it! Iโ€™m sure they appreciate your patience and humor with them!

  5. My daughter had redman's syndrome with Vanco over many years of getting it on and off and diluting it twice and giving it over 2 hours always worked for her to avoid the syndrome and be able to have the Vanco, which we were very thankful for as most of what she usually turns up with growing out is sensitive to it. Two years ago she came home, again, on Vanco and we had basically settled in for just a repeat of 6 weeks of Vanco when she started complaining of funny noises in her ears. This is another side effect to Vanco and when that happens there is no way around it but to stop the Vanco and never use it again. This has made the past two years interesting because with Vanco off the table there has not be one antibiotic that covered the way Vanco did and so each time it often s different antibiotic that the bacteria is sensitive to. She has had to try several new and new to her antibiotics of late and we have increased the length of the list of antibiotics that she is allergic to in some way with reactions bad enough to preclude using it again. Lately she has been on Daptomycin which seems to have given her no problems except that she has to have pretty frequent blood tests since Dapto can cause muscle breakdown and the only way to determine that is with a blood test. Most people think antibiotics are pretty straight forward – get an infect – get prescription and its all over with. Most don't realize that its not only often hard to find the one that will do the job but many antibiotics can do as much damage as they can cure things.

  6. I really hope that we won't be seeing Red-man Syndrome in tomorrow's blog and I hope everything goes well! BTW, I loved your questions Peter. Lol!!

  7. Have you ever thought about bringing a printout outlining all of your medical history in great detail and the current medications / times of administration? As an admission nurse I find when patients do this it makes the whole process quicker. Trust me we hate it as much as you do!

  8. My daughter used an isolation room with the air lock when she had RSV. Other small kids or immunocompromised kids can catch it. They also had her in isolation without the air lock when she had the swine flu and pneumonia together.

  9. HAHA OH MY GOSH!!! Peter being the admitting nurse!! I'm a student nurse and this is actually how I feel asking the patient all the questions especially cause I'm a student I have to make sure I cover everything and its half embarrassing haha thanks for the laugh!! love you guys and good luck!! praying for you for this stay!! x

  10. the questions ahhhhhhhh!! and peter saying how they felt is spot on lol. I never get admitted in advanced I always end up in an emergency situation, like respiratory failure Lol

  11. As an emergency nurse I can totally appreciate this. I try to warn everyone when they first get to the hospital that "we're going to ask you 800 questions, 90% of them will feel completely unrelated to why you're here, and remember your answers because we'll ask these questions about 10 more times today"

  12. Praying that all is well. ๐Ÿ™๐Ÿป๐Ÿ™๐Ÿป๐Ÿ™๐Ÿป๐Ÿ™๐Ÿป๐Ÿ™๐Ÿปโค๏ธ

  13. I used to get nose bleeds a LOT, but since I started oiling the inside of my nose 2-3 times a day, using coconut oil or Vaseline, I've had nary a one. Just a tip. ๐Ÿ™‚

  14. ommgggg the questioning is the worst! The ER here has an intern ask you a bunch of questions. I had trouble communicating because I was in so much pain. The intern was having trouble wording his questions so I could understand them. It was a mess! He went to discuss my case with the Dr and then the Dr comes and asks me the same questions! I was like -_- can you please just do my ultrasound lol

  15. Praying for you Mary. Peter cracks me up, you are right you have to laugh. Laughter is the best medicine. Love you both.๐Ÿ’œ๐Ÿ™๐Ÿ’™๐Ÿ™

  16. OMG! Peterโ€™s re-enactment of the intake questioning was hilarious! Sooo funny guys…and spot on! ๐Ÿ‘Œ๐Ÿผ๐Ÿ˜‚๐Ÿ’œ

  17. We love Boston Children's ๐Ÿ’œ
    Wonder if you've met my sons CF Dr; Dr Wang. We love her. He's been with the same Dr now for over 6 years.
    Good luck during your stay ๐Ÿ’œ

  18. I called that medicine "Commander Pruritus".ย  I was on a huge dose of that IV when I had a brain infection after my brain injury for over 6 Months.ย  The only way I survived was Benadryl.ย  The problem was after time my body got used to the Benadryl.ย  They then switched me to a huge dose of IV Benadryl…all I can say is sorry to my wife!!Hang in there!ย  Keep your positive attitude!

  19. As a retired nurse, I was laughing really hard when Peter was imitating with the questions!! So funny!! Thanks for the ๐Ÿ™Œ ! Loved my respiratory patients!! Although, CF is a whole body disease, our CF patients were on the respiratory floor. Our goddaughter who was ventilated for the first 3 years of her life is now 20!!

  20. Oh. My. Goodness ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ PETER THATS SO FREAKING ACCURATE!!!! Iโ€™m late to the party cause I had an endoscopy done yesterday and wasnโ€™t feeling very good afterwards (lots of back pain from my chronic pain syndromes) but oh man did that help with my nervous belly about my super important pain management appointment today!!! Iโ€™ll let yโ€™all know in todayโ€™s vlog how it goes

  21. "How long have you had cycstic fibrosis" – have you really been asked this by health professionals? Lol I'd run a mile if that was the case!!!

  22. One of the most frustrating thing about the questions is if you are there by yourself, and cannot breathe when they ask the questions…. That's the number one thing that irritates me. I don't mind the questions, but if I am struggling to even breathe, please help me breathe first so I could at least answer your questions.

  23. so if you remember the facebook messages from when I had c-diff, I had a horrid experience with Vanco. hopefully you have a better experience, but if you have nausea and vivid dreams, tell the nurse. there's actually a medicine to stop the dreams!

  24. I know Ollie has training ,but even with out the training he is just amazing ,hie temperament,personality, plus his overall behavior . He is an amazing animal ,and very smart. I love the way he just sits in the back at attention . He doesn't move all over or try to get in front or the back. Some dogs are hazardous to have in your vehicle.

  25. I love you guys give this a thumbs up if you truly love the Freyโ€™s as well, they are my main source of โ€œit is going to be OK.โ€Peter, you are an amazing source of strength GOD, has blessed you in ways you will never know. Mary you are an incredible source of happiness you are strong and brave I LOVE YOU BOTH.

  26. My daughter has to be in the hospital a lot and at our hospital they ask the questions each time there is a shift change. It drives me nuts mostly at night. They will wake us up to ask the questions.

  27. Mary.we are all wishing you well wishes and a speedy recovery.I hope the new antibiotics will work for the newbbacteria with no reactions. Ur doing great girl! Stay strong ๐Ÿ’ช

  28. 7:06 If they ask you who's president and you're blanking out, Mary, just say "Al Gore." You'll have a lot of sympathizers! ๐Ÿ˜‰

  29. I am 21 and still go to my children's hospital for my epilepsy, and my neurologist is a huge part of why I decided to attend university in my hometown and stick around. Children's hospitals make me kind of happy because they're so bright and cheery compared to adult hospitals in my opinion. I hope the stay is a good one and that all that needs to be accomplished does!

  30. could I give this a triple thumbs up? For PETER!!! ANYONE in the hospital…. knows that… and a nurse would laugh also ANYONE that has to ask those knows it. From now on I will LAUGH! As I will think of PETER!

  31. Oh my!! We all got a huge laugh out of Peter's immitation! Admittedly some of the questions do seem that random… toenails. And, ugh, the dreaded med list! Thanks for your continued reminder to keep it in perspective by laughing.

    Hope your hospital time is productive and beats back those infections.

  32. Peter that's was so funny, esp when they ask the times you take your meds nd tell you oh we don't give it at that time we have to change it here. It's frustrating.

  33. It is so sweet and wonderful how Peter and both sides of the family support you… My husband has Huntington's disease and I am his caregiver neither of our family is supportive …. You guys give me hope and inspiration

  34. Can I just say as a frequent "flyer" to hospitals myself, I LAUGHED so hard at Peter and the questions. It was spot on and I laughed so hard I had to run to the restroom. Hope you get to feeling better soon. Oh wait things I always pack, tooth brush and paste. MY LIP MEDEX (chapstick). Lotion, body wash, shampoo and conditioner, hair brush and my cellphone with my spare charger with a longer cord.

  35. Thank you so much for sharing your life with us. It helps me stay motivated to keep going even on days like today, where I am in hospital again, after only being home a few days.

  36. Hahaha yes the questions are so crazy! I will never understand why one person asks all the questions supposedly puts the answers in the computer and then the next person asks the same questions, like what was the point of typing them in? Were you really just checking on your insta account??? Also Mary I noticed you have your pump and tube feed out to be more mobile. You may have heard of it already but the pump company makes a tiny back pack that holds the pump and tubing so you can be even more mobile, I had one when I did tube feeds (I'm post transplant now) and loved it! It made it so easy to get around and at night I would hang it next to my bed! Hope things go well for you this hospital stay!

  37. In India there are some CF patients who can't afford to even buy enzymes for themselves who can't afford the expenses of medicines and they just can't survive for long

  38. when i found out i was allergic to vancomycin, i had an allergic reaction but they told me there was no way i could actually be allergic because my symptoms were so unusual to the real symptoms (i ended up only getting hives ๐Ÿ˜‚), but they did the drawing out of 2 hours and hopped up on benadryl just in case

  39. Hey Mary I admire your strength and corage I hope you continue to fight back you go girl from your new friend tammy ps.oh Mary I've been watching your vidios for awhile and I love them you seem so nice and Peter seems like such a great guy your lucky to have such a sweet guy oh that was go cute that olly kissed Peter it probably suprised you Mary considering that he never did this before Mary from your friend Tammy ( nickname( spike ) ๐Ÿ˜Š๐Ÿ˜Šโ˜บ๐Ÿ‡๐Ÿฅ๐Ÿ•๐Ÿถ๐Ÿˆ๐Ÿ•๐ŸคI l love animals very much I have lung problems to ever since I've been born I've got bronchial ashma and I take 2 inhalers and I couch a lot to and when I go outside I get short of breath from the cold air and I couch a lot of mukeus to its scary when I can't breath I've had to go to hospital many times and be on oxegen it's real scary for me but I do the best I cร n and take it one day at a time I also have arthritis and tendinitis and it's painful I have a cane and walker but inside I just sit down a lot and I love crafts and utube scary gost shows and music and going to movies and shopping I've been through a lot in my life but I seem to of got through it I should be dead but I'm a very emotionaly strong person so I've servifed and I take it one day at a time and stay try to stay strong phisicaly and emotionaly but life cร n be very hard but you just keep trying as hard as you cร n that's what I do well hope you well ok bye

  40. I hope your treatment has been going well and I has been hard with a miscarriage but I'm not doing that good with the emotions

  41. Iโ€™m a nurse and doing an admission is my least favorite part of my job. I feel so bad that I have to ask so many questions. And some of them are totally crazy detailed (honestly useless) questions. You are the kind of patient I LOVE to have though. So sweet and patient. Hang in there Youโ€™re doing great.

  42. You both have such a positive outlook No matter what card your handed you do your best to find the positive and Peter you made me laugh hysterically when you did your representation of questions asked when you are in hospital because I have spent months and months in the hospital between cancer and brain surgery and I have to tell you that it was spot on and super hilarious You both are such an inspiration. Mary God's is using you to help others so on your toughest days remember you have such purpose and God has chosen you for a very special purpose and you are a very special woman.

  43. Sending prayers your way Mary & to you as well Peter. Ugh being admitted is such a pain literally & then add on the million questions they expect you to answer while feel like complete crud. I one time was sick that I was on the verge of passing out from being septic and the nurse wouldn't allow my mom to answer, 5 minutes later I dropped to the floor, so that nurse shut up fast. Question though, I have stomach issues, sphincter of oddi as well as gastroparesis. How do you deal with taking so many antibiotics over the months since they tend to kill off good bacteria as well as promote the perfect environment for yeast?

  44. Loololololol when Peter started asking those questions I lost it ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚

  45. I have to go to a hospital every 3 weeks and they decide if i am well enough to go home or if i have to stay. It sucks but it helps me ๐Ÿฅ

  46. My least favorite hospital question is โ€œdo you want to harm yourself or othersโ€ as someone who has struggled with selfharm in the past I find it uncomfortable. I was last in an emergency room like 3-4 years ago when some thing heavy fell on my foot at that point of time I was still struggling with it. If my mother was not in the room I would have answered honestly but I lied and I wish I didnโ€™t.

  47. I just got to the q&a at the hospital part and its so funny and so true, every time I get to ER or pre ER (less crowded at the hospital that way) they ask the same questions every doc or nurse that comes in do it all over again even when I come day after day and they know me already and when I make jokes about it people just cant understand how I can e so happy and cheerful about my health. Its the only way people! lol

  48. Been binge watching your videos while stuck in bed with a really bad myasthenia gravis flare up. Thanks for making real life chronic illness videos. Love you guys.

  49. Hahaha when you said she is treated to by adult physicians I immediately thought that the peds get treated by juvenile doctors. ๐Ÿ™‚

  50. Coming from an RN the admitting questions we hate too lol. Some nights I felt like I was on a record repeating depending on how many admissions got! Loved the skit Peter nailed the questions LOL!

  51. Omg those admitting questions are literally so true! My favorites are โ€œAre you pregnant?โ€ (My response always is โ€œIโ€™m 15 and a virgin, what do you think???โ€), โ€œWhen did you last have intercourse?โ€ (My only response is I swear โ€œ๐Ÿ˜‘๐Ÿคฆโ€โ™€๏ธโ€), and my absolute favorite of them all (especially when they asked when I had a bad lung infection) is โ€œWhen was your last menstrual cycle?โ€ I was like โ€œAh yes Iโ€™m very sure thatโ€™s why I canโ€™t breathe, I mean who cares if Iโ€™m turning blue, letโ€™s worry about this first right?!โ€. Ugh whatever I guess itโ€™s protocol ๐Ÿ™‚ You both have a very positive outlook on these things… Thatโ€™s very admirable! Btw Peter sounded exactly like the nurses, and doctors do during the literal game of 20 questions ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ I was laughing so hard I had to cover my mouth to not wake anyone up ๐Ÿ˜‚๐Ÿ˜‚๐Ÿ˜‚ he pretty much summed that situation up to a T! ๐Ÿ‘Œ๐Ÿผ

  52. This might be a dumb question but if you're allergic to the medication, why don't they just find a medication you're not allergic to? Are you just resistant to all the ones you don't react to, or is it somehow a different type of allergy? Also! The what's the date and who's the president questions are ones I get all the time because I'm usually there for brain surgery; it makes me nervous too sometimes but most of the time I just think it's funny.

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